Saturday, September 17, 2016

What We Are Up To

All of EK's ballerina dreams have finally come true! She was able to audition for a part in her dance studio's production of the Nutcracker and she was cast as an angel. She is beside herself!!!  She will spend every Saturday between now and December in rehearsals and she couldn't be more thrilled!

All is well at school for Miss EK.  She has been nicknamed the "AR Machine" bc of how many points she has earned. The reading teacher in me is beaming with pride!   One of her favorite parts of each week is definitely spirit dress day on Friday when she gets to attend the pep rally. I love that mama sends me pictures of my girl and her friends!
EK has started guitar lessons with daddy. She is LOVING learning to play!
Walker got to spend some special time with Kay Kay and G. He got to call the shots for what they did and fishing was absolutely a must!  He started out with the little fishy but then reeled in his first catfish!  He was super excited!
Walk is begging to take guitar lessons as well.  His hands are not quite ready for formal lessons, but that doesn't stop him from jamming out all the time!
Miss Em is having a ball at preschool. Her best little friend from mother's morning out is actually in my class this year, so Em doesn't get to see her as much as she would like. When they do get together, you can expect to see them holding hands. They are the sweetest!
We went for Em's cleft team appointment last week. This is just an appointment where we sit in a room, and 8 different doctors rotate through to see us. They then meet together and discuss her plan of action. We saw her speech therapist, plastic surgeon, dentist, oral surgeons, and several others. It was determined that her P flat surgery was indeed unsuccessful. This was absolutely not the news we wanted to hear, but we were not surprised to hear it. We were told before surgery that we would be able to tell an immediate change in the way she sounded. We couldn't. She has remained hypernasal. So, where do we go from here?  Well, the team believes that the P flap is actually in place, but it is just not big enough. Her palate was really wide and it is just taking way more surgeries than expected to piece it together. The team is hopeful that they will be able to just inject fat into the flap to beef it up and fill in the rest of the space needed. Great, let's do that!  Here's the catch. They can't know for sure what is happening with the flap until they put a scope through her nose and down her throat....while she's awake....and then she has to talk.....with a camera down her throat. Yeah, that should be fun. Children don't normally cooperate with this test until they are older, so our surgeon wants to wait until she is 4-5. We, along with her speech therapist would like this to happen sooner so that her speech can improve. Our speech therapist believes that she can convince the surgeon to go ahead with the scope after we have seen no improvement with our speech sessions over the next couple of months. All that to say, we are in a holding pattern for now. The prayer would be that she can have the scope done within the next couple of months and then that she cooperate with the test so we can actually get the answers we need to help her. She's a trooper though and doesn't seemed to be bothered by any of this!

We are all enjoying our football weekends at home. Today, we met up for some BWW and more games than we could count. The kids had a blast and are begging to go back next week!
Hope you have a fabulous weekend!

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